Me ‘n My Binky

Nyana is two months old today, and also tonight, reached 36 weeks gestation. We’ve had a soother in her crib (and in her solarium) since she was born, but she’s finally big enough to use it. She sure didn’t let the ventilator get in the way of enjoying it tonight.

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About Mrs. B

Wife, mother, marketer--not always in that order. Lover of fine food, good company, and exceptional grammar. Mother of one former micro-preemie and one full-term monster baby. Building childhood memories in Vancouver's suburbs.
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5 Responses to Me ‘n My Binky

  1. T says:

    How sweet! She sure is a joy.

    I woke up feeling crappy, and the first thing I did was come here to see if there were any new posts. Funny how a baby so far away born to two people I have never met can make me feel so good. My hubby just saw me wiping away tears and asked me “Is the baby ok?” without even knowing which website I was on.

    Keep up the good work Nyana! We’re thinking about you in Kentucky!

  2. Chantal says:

    Amazing how something so simple and is taken for granted with other babies can bring such joy to a little one like Nyana. That is absolutely the sweetest thing I have seen in a long time – so happy that she is able to enjoy that and so are you!

    Still thinking good thoughts for all 3 of you and hoping Nyana can do that without a ventilator in the way soon!

  3. Olivia ♡ says:

    @ T – I’m totally there with you. And I definitely update my boyfriend every time there’s a new post, LOL.

    This is so sweet. She’s getting so chubby!! 😀 ❤

    – Olivia

  4. Lynn Duncan says:

    Well, that was totally sweet! Another day brightened (and we have sun and blue skies here in So Cal, at least for the moment) and a distance bridged.

    Thanks again for sharing the Wonders of Nyana.

  5. Wendy says:

    Wow. I just read everything and I have to tell you that I know exactly what you are going through. My son was also born at 27 weeks, was intubated for 5 months and stayed in the BC Childrens Hospital NICU for over 12 months. The doctors didn’t know why they couldn’t extubate him because he was on the lowest vent setting for awhile and his lungs weren’t that bad. They only found out the reason was because he has tracheobronchomalacia when they were preparing him for a gtube when he was 7 months old (4 months adjusted). We were in 42 for about 4 months before they moved us to P3 (which is right next to 42) which was more private because there was only one other baby in the room. We were in P3 for 2 months before we forced them to move us to a single room. They have 6 single rooms in the south wing by the way (which is on the other side of P3). If you want a little more privacy or just to be able to spend the night with Nyana, you should tell them you want your own room. It’s also nice to be able to turn the lights off at night so your baby learns the difference between night and day. Deb, the charge nurse, is the best person to advocate on your behalf for this sort of thing. Don’t let the nurses try to tell you that you can’t touch your own baby. The best thing for your baby is you, not all the drugs that the nurses give them. I had a problem with the doctors and nurses giving my baby morphine and midazolam(sedation) like it was candy. I found that they preferred sedating him so that they wouldn’t have to watch him and could sit around talking with other nurses. Also, you have to watch what you say and do around the nurses because they tattle to their head nurse Julie. You’re supposed to go to Julie if you have problems with any of the nurses but she just defends them and attacks you. None of the neos there are good and the pediatricians don’t have the power to make important decisions. The doctors say they are family centred but they don’t care about what the parents think is best for their child. The doctors tried making decisions without consulting me but I let them know that was unacceptable. You are the only advocates for your baby so make sure your voice gets heard at rounds and insist that they contact you for EVERYTHING. If you have problems with the doctors, go to the social worker. She’ll try to help advocate on your behalf. If it gets really bad, where the social worker can’t help, you should go to patient care quality office. The best thing to do is try to get out of the NICU ASAP. We ended up getting transferred to the TCU (which is on the same floor, near the OR, about a minute away) and only then did we get a good doctor who said this baby needs to be home with his parents. Since he’s been home, we have discontinued all his medication and pulled out his gtube because the area around it was getting infected. The NICU doctors didn’t think he would ever be strong enough to eat orally but we proved them wrong just like we did with everything else they tried to tell us. So stay strong and follow your gut feelings.

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