Hello? Is anyone there? Hellloooo?
It’s been more than two months since we’ve given you an update on What We Made. Two months of wireless days and sleep-filled nights; two months of countless drafts of posts started but not finished; two months of happiness wrapped inside a no news is good news mentality.
But, despite no news being good news, there is a lot of good news that’s not being shared with everyone who loves our favourite preemie. Today we had more good news when we saw Dr. Dee, and at this point not keeping everyone updated on all of this good news has now become downright criminal. Since many of you have shed tears with us in our struggle to get to this point, it is inconceivable that we would deprive you of what we’ve all been working towards. Praying for. Trying to imagine despite however far away it seemed at the time. You’ve all been very patient and understanding with our silence recently and please just know—it’s not you, it’s us. We’ve been preoccupied with getting back to normal living, at least for a little while, and carving out and defining some new dynamics, while simultaneously getting ready for some big changes around the corner. So… let’s catch you up, shall we?
I’ve had this post brewing in my head for probably the past six months. I’ve never quite known where to go with it, but tonight I think I finally have the motivation and direction that I needed to finish it off. You see, today was ever-so-quietly a huge day in Nyanaland. At noon today, she finished her one-hour bipap treatment and we put Mr. Bipap back in the bedroom…for good (hopefully, knock wood and cross your fingers). Tomorrow, we officially start having bipap on only during nights and naps. Tomorrow is the first day where she doesn’t spend any waking hours hanging our with Mr. Bipap. She’s still on oxygen through her nasal prongs, but with her new 7′ extension tubing she now has 13′ of freedom and can trek all over the living room, hitting all the major landmarks (couch, table, toys, playmat, etc) with very little trouble. As exciting as it is, we are trying to maintain a guarded approach and will be having a pretty chill weekend so we can keep an eye on her during the big switch, and to make it as easy for her as we can. But it’s still pretty exciting!
Nyana was supposed to be a Christmas baby. Her original due date was December 17th, and from the moment we found out we were pregnant, Don and I looked forward to the holiday—our first Christmas as a family after spending almost a decade’s worth of Christmases as a twosome. And then before we knew it, I was locked up on bed rest and then it was September and her two-pound arrival dashed all hopes of a happy family Christmas at home with a newborn. For a few optimistic weeks shortly after her birth we still hoped that she’d just ride out her third trimester on the outside and still come home just before Christmas, as planned. But of course, “as planned” never happened. And so we spent the whole of the following year healing and growing and regenerating lung tissue, and when December 1st arrived, Don and I started to get excited about her first real Christmas, finally, 15 months after she was born.
Then two weeks before Christmas, she got sick.
‘Twas the night before Christmastimes, when all through the flat
Not a creature was stirring, not even a cat.
The stockings were hung on the CD shelf with care
Because we all know the best hook support is found there.
Nyana was nestled all snug in her crib,
while she danced with visions of food stuck to her bib.
And Mumsy with her book and I stalling for bed
Had just locked the front door and given Princess her meds.
When out in the alley there arose such a clatter,
I sprang from my couch to see what the heck was going on out there – there are people trying to sleep, dammit!
Away to the window I flew with my phone
To get a good pic of this, whatever was goin’ on.
They say misery is a muse. If I didn’t believe it before Nyana was born, I certainly believe it now. I was shocked when I logged in tonight to see that the Sunshine Brigade has been missing in action since you all celebrated Christmas! Don’t get me wrong—I love when no news is good news—but I miss sharing our perfect little lady with the world.
It’s been busy in Nyanaland as of late. We brought her home from the PICU on Christmas Eve as planned, and had an eerily quiet day on the 25th as the world celebrated the holiday without us. We didn’t hang our stockings, we didn’t open presents, we didn’t gorge ourselves on turkey and overimbibe just a little. It was just an ordinary day while everyone we knew enjoyed the biggest day of the year, and Don and I almost felt lucky that we’d managed to enjoy an entire Christmas day stress-free. The rest of the winter break rolled on by with Don practising his skills at being sole caregiver and I sat on the sidelines watching, practising letting go.
I’ve been back at work for three weeks now and loving every minute of it. Don is settling in nicely to his stay-at-home-Dad role and we’re test driving alternative titles for him. Don is leaning towards a variation of Hausband, while I’m thinking more along the lines of Manservant. For now we’ll just go with Director of Family Operations.
But in all of our busyness we’re sad to see the blog neglected as it has been. We have so many things we want to share with you all, like how she’s so close to walking now, or how she calls the cat a Gak! every time she sees her, or how she’s learned to hold her play cellphone to her ear and chatter up a storm. But these tiny snippets of awesome aren’t fit for a blog post, and as Nyana grows up and grows out of the tiny preemie she was, this blog is becoming less and less the vehicle for telling her story. So with these considerations in mind, the Sunshine Brigade has taken up residence on Facebook. Become a fan to keep tabs on What We Made—updated daily with pictures and videos and anecdotes of everyone’s favourite preemie. We’re not abandoning this blog, but we don’t want to abandon you, either. Like us on Facebook to stay up to date on the day-to-day goings-on in our world, and if you haven’t already, subscribe via email to the blog so you don’t have to keep checking back for updates.
LIKE the Sunshine Brigade on Facebook!
PS: Stay tuned for a holiday update—there are only 19 shopping days until Christmastimes Day! We put up the decorations today and next week we’ll put up the tree.