It has been a good couple of days in NyanaLand. Without wanting to get too far ahead of ourselves, it’s hard not to get excited about the progress we’ve made over the last little while. In a nutshell, Nyana had a very strong Saturday and Sunday, and it seems that the right people are taking notice. The decision was made today to switch the mode of her ventilator from Pressure to Volume and she responded fairly well to it. About 3 0r 4 different settings on the ventilator have been turned down and she’s holding comfortably with the decreases. In fact, she was so comfortable tonight our primary actually called us at home after our visit to tell us how well she was doing. Which I was very happy for, after getting over the initial shock of seeing that Caller ID tag. “CHLDRN&WMEN HLT” is not something that we necessarily want to see when the phone rings.
But tonight it was. For those following along at home (or work), Little Munch was sitting at 35% o2 and satting in the 90s. That’s a new personal high score! Needless to say, she has two very proud parents rght now and I’ve decided to celebrate the achievement with a nice collection of Ny Candy. Here are a few of my favourite pics from the weekend, enjoy.
Sometimes the lights are bright.
Dad takes Nyana out for dinner.
It's a very, very cozy blanket.
Nyana shows off her new favourite outfit. Notice how Mum not only matched the blanket underneath, but rigged the footie so you can feed the wires through.
Mum gives Nyana a little brush...
- …and then Nyana tries it out for herself.
Easily my favourite shot yet. I can't wait to hear her tell a joke.
Excited, curious, and happy. She loves the Snack Wrap.
Softest, fuzziest, tastiest little head.
Ring Shot 2.0
Skyping with the Ontario Bracketts. That was cool.
One good thing about a Neobar is that you don't have to hold the soother yourself. She was quite happy like this for awhile.
Adventures Of The Sunshine Brigade 
The pictures are awesome. I only have 3 weeks to go before I leave. Lots of work to do in that time. See you soon. Love Mom
We are so happy to hear the good news!!! Although we have never met, my husband and I have been following Nyana’s progress since she was born. She is sooooooooo cute!!! She was just holding out until she was full term to start thriving. We will continue to send positive thoughts and wishes your way!
Amazing to see the positive changes. Go Nyana Go. You’ll all be home before you know it. 🙂
Don & Karen,
I can tell you that coming from a man who usually only cries when the mailbox is full of bills, the tears this time are welcome. Awesome photos, awesome news, awesome parents and such a totally awesome little girl …….. “Uncle Ben” … (not the rice)
Love the rigged sleeper!
Thank you for sharing these wonderful pictures. It just makes me smile to see Nyana Rose looking so happy and healthy. Her hair is very pretty. I’ll keep sending prayers and positive thoughts for continued healthy lung development.
She looks like she’s getting so big!!
Love the ring picture…….and, well, all of them. 🙂
Karen I have known you for a long time….and am simply in awe of the mom you have become…your dedication, love and devotion to your daughter is heart warming…she is a very lucky girl to have the parents she has….Nyna is one lucky little girl…hugs to you my other daughter…..
Oh, I’m in tears for the happy progress! Sweetest pics you’ve posted ever. Nyana looks so alert and comfortable. Her chubby little arms are wonderful to see. I’m trying to figure whose fingers, Mom’s or Dad’s, she inherited. She’s got long fingers and in the pictures it’s not always clear as to which of you are holding her little hand.
Does the “soother” (here in the States we call them “pacifiers”) help get her ready for sucking motions when she’s off the ventilator and learning to eat on her own? Strengthen the jaw muscles, while keeping her content? That lavender outfit looks so cozy like she’s a toasty little burrito. Sweetness! Thanks for the update!
Bisc, we’re trying to be proactive about the feeding, yes. Trying to teach a baby in the NICU to feed is always a hassle, nevermind a baby who’s been intubated for so long. We’ve been warned that she might have an oral aversion and that feeding will be hard to teach, so I’m hopeful that the soother (we also call them pacifiers here) will teach her that things in her mouth isn’t always a bad thing, and also keep her accustomed to suck/swallow/breathe that is so important for feeding from a nipple. Fingers crossed.
Eli would only take the Soothies for the longest time, so we ended up buying the Soothie bottles. They are the same shape as the pacifiers. Are they available up there? I have only ever seen them at Kohls.
Nyana is just wondrous in all these pictures! She is sporting a great wardrobe, but my favorite thing today is that grip she has on her brush.. just too cute for words!