Happy World Prematurity Day!

From the March Of Dimes website:

  • In the United States, 1 in 8 babies is born prematurely.
  • Worldwide, 13 million babies are born too soon each year.
  • We’re working to address the crisis at home and abroad.

“Honor the million babies worldwide who died this year because they were born too soon, and the 12 million more who struggle to survive. November 17 is World Prematurity Day and when we focus everyone’s attention on the serious problem of premature birth.

“Like” World Prematurity Day on Facebook. Read stories from around the world and share your own. Help spread the word by updating your Facebook status with a message on premature birth. Together we can raise awareness of this serious problem and help more babies start healthy lives.”

So here’s my preemie. My survivor. Daddy’s Little Hero. Princess Chub Chub of The Sunshine Brigade. She’s the most amazing little thing, and today she is exactly one month away from being one year corrected.

This preemie decided that the last trimester should be spent on the outside, and then spent 222 days on the inside..

This preemie has had a scalp IV but her double whorls will ensure that no one will ever see the small cescent scar. Only 5% of people are born with a double hair whorl.

This preemie is a puller. She started with her umbilical cord and has continued to pull on anything she can wrap her fingers around since. Intubation tubes, oxygen lines, satprobe plugs, vital stats leads, CPAP hoses, feeding tubes, venting chambers, nasal prongs, oxygen tank keychains, necklaces, Mum's hair, Dad's nostrils...you get the idea.

This preemie had three blood transfusions and relied on the generous donations from people just like you. Thank you for donating, your gift saves lives.

This preemie was once receiving 100% oxygen from a ventilator and the doctors told us there was nothing else they could do. It was all up to her to pull through.

This preemie was fed through a feeding tube down her throat at first, an OG. She kept gagging it out though, so they ran it through her nose, an NG. Then she got her G-tube, a direct port to the stomach. Now she has a G-GJ-tube, which has adds the intestinal connection feature to the G-tube. The G-GJ also comes with a bile bag accessory, which is a lot of fun right there.

This preemie LOVES books.

This preemie once held the only patient room in the whole NICU that had a window directly to the outside. That was the first time she saw snow. She has yet to feel it for herself.

This preemie has an infectious laugh.

This preemie had to wait a week before getting held by Mum for the first time, and two weeks for Dad! Still about 10 weeks earlier than most babies get to meet their parents though...

This preemie has her own website, facebook account, and gmail address.

This preemie had a PICC line that ran from her left wrist, up her arm and into her heart. The inserted line was about 6" long.

This preemie has one tooth. It broke through a couple weeks ago, and is still a lone soldier.

This preemie has dodged a lot of bullets. Of all the things that could have gone wrong, we've had a lot go right (it just took a little longer). We consider ourselves to be among the luckiest of NICU survivors.

This preemie weighed 2.5lbs at birth. She now weighs 20lbs.

This preemie has BPD, bronchopulmonary dysplasia. It's a chronic lung disease that she will grow out of, eventually.

This preemie can clap her hands, reach for the stars, usually wave hello or goodbye, and sometimes she'll high five.

This preemie is Nyana Rose Brackett, Royal Princess of The Sunshine Brigade...and she's absolutely perfect.

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About Donners

Thirtysomething father to The Royal Princess of The Sunshine Brigade, a 27 week preemie who survived 222 days in the NICU. The Queen and I are still crazy in love, and life in Vancouver's West End is getting back to a whole new normal that we've always been waiting for but never knew we would get quite like this.
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15 Responses to Happy World Prematurity Day!

  1. Olivia ♡ says:

    I love you, Nyana! You are my hero! ❤

    Beautiful pictures of the cutest micro-preemie in the world! ❤

  2. Olivia ♡ says:

    Olivia ♡ reblogged this on ♡ Love, Life, & Noah – Prairie Baby Dreams ♡ and commented: Happy World Prematurity Day to my favorite micro-preemie, Miss Nyana Rose!

  3. Robyn says:

    zinhle’s had her one lone tooth for over a month now! silly girl 🙂 and what?! 20 lbs?!!! go ny, thats just wild. zinhle- born 4 days after ny, 39 weeks gestation, 7lb 11oz is HERSELF only 20.5 lbs ❤ way to grow princess chub, you are absolutely perfect

  4. Duncan & Dorothy Gillies says:

    Hi Nyana, Don & Karen What great pictures and such an amazing story – sounds like her Daddy (and Mommy) sure love that little one – love just oozes out of those captions for every photo. Looking forward to making a trip west to see her in person – maybe next summer.
    Love Duncan & Dorothy

  5. Lee says:

    Thanks again for sharing your fabulous photos of the Sunshine Brigade’s absolutely awesome hero. And by the way, The EYES have it, my but she does have gorgeous eyes. It runs in the family.

    Lee

  6. Anonymous2 says:

    That face is to die for. She’s an awesome little girl and so, so beautiful.

  7. Linda says:

    Don, This is your WORST blog by far!! I mean, tell me, how is a person supposed to read this when they are bombarded with all of those incredibly gorgeous pictures of Little Miss. All I could do was drool over each picture and it was only after reading this blog for the 4th time that I actually read your words and the captions below each picture.
    In all seriousness now, this is one of your BEST blogs….I couldn’t get enough of the pictures and I thank you from the bottom of my heart for posting these.
    You did create a problem, though. I now can’t decide which of these pictures I will use as my desktop background. It will probably take me another 4 hours of drooling before I can make my decision. Which means housework won’t get done, dogs won’t get to the dog park, Pepin won’t see the vet and even the ladies may have to do without dinner!! Thanks, loads, my dear son-in-law…I love you too!!

  8. Love you guys. Way to spread the word with 27wkr cuteness. Love our Miracles 🙂

  9. Margie King/mak1 says:

    This is the perfect way to commemorate World Prematurity Day! It was hard to read while staring at each drool-worthy photo, though. I love these big close ups!! Linda, all those things will wait. You deserve to soak in all the awesomeness that is your dear grand-daughter.

  10. Max's Mum says:

    Lookin’ good Nyana! Max is sending some preemie-powered high fives your way! ❤

  11. Nyana is a super star! Yes indedd the eyes have it, and me.. and how proud is the entire Brigade, even with the two, well, three of you doing the work? But having the fun, too.

    And I sure am seeing Karen in some of those pics, strongly, and Don in others.. she really did inherit her looks, hmm?

  12. Twiggy says:

    Miss Awesomeness!! She’s just so adorable! Thank you for the wonderful pictures..Your preemie sure is amazing.

  13. Anne Brackett says:

    Nyana, Don and Karen. The story of your preemie is amazing and the pictures just awesome. The eyes light up the world. Nyana is a very lucky little girl to have two great parents who love her dearly and not to mention wonderful great-grandparents and of course Grannie and Grandma.

    Linda..you could make a collage and hang it on the wall beside your desk.

    Love to all from Ontario

  14. ShannonB says:

    Best. Post. Ever.

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