- Eight pound babies look huge when they started out at little more than 2 pounds.
- Everyone has a story. Whether it’s a friend, or a cousin’s co-worker, or a co-worker’s mother’s bowling partner’s daughter, everyone knows someone who has had a preemie. Every story ends with, “(S)he’s now the tallest and the smartest in the class!“
- The birth of a baby, preemie or not, is certain to put a ton of stress on even the healthiest of marriages. Even Don and I—who like to saunter around like we’re the King and Queen of Awesome Relationships—can’t take our relationship for granted while we navigate the NICU.
- BC Women’s is the only hospital in Canada to supply donor milk, and Nyana was lucky enough to benefit from it for her first three weeks of life. It’s also worthy to note that our NICU is the best in the country, and is part of BC Women’s hospital, not BC Children’s. If you make a financial donation to BC Children’s, the NICU won’t see a penny of it.
- I know all the words to way too many songs. Nyana very much appreciates this.
- One latté and one London Fog every day equals a great amount of money that will soon need to be spent on diapers.
- Don and I are blessed to have amazing people in our lives. The past months have been a real eye-opener as to who true friends really are.
- Hospitals are incredibly wasteful places. It makes me sad to see the amount of recyclable—or worse, reusable!—crap thrown in the garbage.
- Watching your own parent become a grandparent again is awesome.
- The people who dedicate their lives to fixing my baby are awesome.
- Skype is awesome.
- Don and I get to appreciate a million things about our daughter in a way that many parents never will. The three of us have fought the battle of a lifetime together already, and she’s never even smelled the outdoors.
- Apparently, patience is a virtue.
- The collective power of hundreds of people all wanting the same thing is outstanding. Call it the power of prayer, of positive energy, call it what you will, but when Nyana’s army rallies together, things happen. She feels your love.
- Formula puke stinks (and stains!).
- Subway sandwiches are tolerable for a maximum of two (2) meal replacements per week. If cooking is not compatible with the current schedule, Nando’s Chicken, White Spot, Thai Away Home and Downtown Sushi Bar are excellent alternatives to Subway.
- There will always be people in your life who want to rain on your parade. Nothing saying you have to let them.
- Room air is 21% oxygen.
- A three-month old baby doesn’t need to live within our walls to produce an insane amount of laundry.
- Don and I are stronger—as both a twosome and as individuals—than either of us ever gave ourselves credit for.
- I laugh now, but three months ago I didn’t know the definition of the word “intubate”. CPAP? Blood gas? Dexamethawhat??
- “Build-A-Bear” is a perfectly acceptable place to shop for outfits for special occasions.
- Christmas in the NICU is a really magical, special experience. I wouldn’t wish for anyone to have to experience it, but I’m very grateful to have experienced it myself.
- I’m also very grateful to be Canadian and to have universal health care. I don’t even want to think about what this would cost us if we lived across the border.
- Life is what you make of it. Save for a few “woe is me” moments, Don and I have done the best we can to turn every moment of our NICU journey into a joyous occasion.
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- I Can Haz Lungs Now?
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INFOMERCIALS
I had to laugh at myself….when Noah was put on CPAP, I was like “Hey, I kind of know what that is” (only because of reading your blog for so long, lol!), and I ALSO learned that 21% is room air 🙂
❤ Hearts. That is all. 🙂
Every one has a story, that’s for sure. One of these days Nyana will be able to tell her story with thanks to this blog written by her Mum and Dad. She will see how many people swaddled her with devotion and unconditional love and she will learn that she is a fighter and survivor. Yes, Ladybug may have entered this world in a tiny way but over these past few months she has made a huge impact on everyone around her.
And I have no doubts that as she gets older she will continue to astound us with her determination ~ something she inherited from her two very loving, strong and extraordinary parents.!!
Love you Ladybug.
Grannie xoxoxo
We all know Nyana would have been special whenever she was born, but she has a great story to tell when she is ready.. actually a great story to hear as time goes by.
And for her wonderful parents and all of us, we get our education is all sorts of ways, most often not some course we signed up for but just from life.
It is just fine to be a foot soldier in Nyana’s army.
I enjoyed your list! You guys are awesome! That is all.
Great list. #22 is one of my favs, though. 🙂
Hi from a WTE Moms of Preemies Board (I think that’s where I found your blog)
so about #24… how does it work in Canada, here they are going to make us pay for the healthcare and we can’t afford it. We qualify for Arizona state health care for pregnant women. I don’t know how much our 2 separate NICU stays would have cost… we never saw a bill. A lot I am sure. After baby is born I am no longer covered and my LOs get coverage for a year. The rest we just pay out of pocket. We spend a LOT less than what the Gov. is going to charge us. I figure since Canada has been doing it longer they probably have a better system in place then the one they are trying to implement here.
I am reading Nyana’s story… I have gotten this far since yesterday. I just can’t stop. She is amazing and so are her parents.
Thanks, Stacey! Welcome to our roller coaster!
Our system is ridiculously easy. Every Canadian pays a monthly premium of +/- $50. The amount varies depending on income level and a few other factors, but there is a maximum amount that no one pays more than. We all pay monthly into the collective pot and that’s that. Visit any walk-in clinic, family doctor, or ER and everything is covered. All tests, all visits, surgeries, everything.
Most Canadians have extended health coverage through their employers; this covers medications, optical, dental, chiropractors, massage therapists, etc. Most private plans cover 80% of these things not covered under universal care. Most elective procedures – plastic surgery, teeth whitening, that sort of thing – aren’t covered, though I’m sure if you shopped around you could find an insurer who would cover this for a premium.
My heart breaks every time I think about an American family walking the same road as us. Like the NICU isn’t stressful enough… you have to worry about how to pay for it all, too?? So not fair. Good luck in your journey, and thanks again for coming along on ours!