Well, we’re about to take the plunge and retire this space, after two whole years of posting in Nyana’s blog, Adventures of The Sunshine Brigade. With our Little Big Man just six weeks away (give or take) from making an appearance, and with Nyana’s lung disease nearly a distant memory, it only makes sense that we carve out a new little corner of the Interwebs and leave Nyana’s story as it is, closed on her second birthday.
We want to maintain the integrity of Nyana’s story as it is—this blog was created as a means to keep family and friends informed on Nyana’s condition during those first fragile days of her life. As her lung disease became more apparent and we were able to fully grasp what her immediate future looked like, this blog morphed into a keepsake for 16-year-old Nyana to reflect upon, and at the same time this blog became therapy for Don and me; an outlet with an attached support system that enabled us to continue putting one foot in front of the other. Over time, we’ve come to realize, it’s helped other families in similar situations endure their long road, as they realize that others have come before them and survived; the same way we used to look to those on the “I Was A Preemie, Too” board for motivation to continue.
But as Nyana outgrows her lung disease and as our family grows in size, this forum just isn’t the place any longer to tell our story. Nyana’s story deserves a place of its own, not to be overshadowed by the arrival of her brother and the mundanity of everyday life. Our story as a family is no longer about respirology appointments and machines called Misters and hoses for noses. Our story is now about playful toddlers and about-to-be-born baby brothers, and adjusting to yet another new normal that is as normal as can be. And as much as Nyana’s tiny beginning needs a place of its own, our story as family deserves a place of its own, too, a place we hope you will still enjoy visiting.
And so, without further ado…
(IF YOU ARE NEW HERE AND LOOKING TO START AT THE BEGINNING, Nyana’s story starts back on September 20th, 2010 in a post titled Hello, World.